https://www.rollingstone.com/culture/culture-news/brooke-eby-dead-obituary-tiktok-als-1235636117/
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“Eby’s longtime advocacy partner group ALS Network announced the news on Oct.”
“@limpbroozkit My diagnosis story #grwm #diagnosis #terminalillness #als ♬ original sound – Brooke Eby It was a death sentence.”
“By CT Jones CT Jones Contact CT Jones on X Contact CT Jones by Email ‘Adults’ Made a Fake K-pop Song.”
“View all posts by CT Jones October 2, 2026 Add us as a Google Preferred Source Brooke Eby Brooke Eby/Instagram Brooke Eby , the beloved activist who documented her battle with ALS for millions of people online, has died.”
“She was diagnosed with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, four years ago.”
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“Account Welcome Manage Account Manage Print Account Sign Out Log In Obituary Brooke Eby, Beloved TikTok Star and ALS Activist, Dead at 37 Friends, family, and followers remember her as a defining voice in ALS awareness.”
“On TikTok, where she had over 300,000 followers, Eby used humor and wit to document her deterioration.”
“Brooke’s impact will live on in every person she reached and throughout the community she created.” Eby is best known for her advocacy and fundraising surrounding ALS awareness and research.”
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““Brooke changed the way people see ALS, but she also changed the way people living with ALS find and support one another,” said Sheri Strahl, president and CEO of the ALS Network.”
““She brought humor into incredibly difficult moments, spoke with fearless honesty, and created connection where it was desperately needed.”
““I would rather people see and connect with me and that way they have a dog in this fight.”
“Sometimes this looked like taking her medicine with a beer bong, other times it looked like being frank about the emotions she had when she failed a breathing test, used to track the strength of her respiratory system.”